Recognizing the Benefits of Music and Massage Co-therapy in Pediatric Palliative Care
Recognizing the Benefits of Music and Massage Co-therapy in Pediatric Palliative Care 1024 680 JoAnna Pendergrass, DVM

For adolescent patients in home-based pediatric palliative care, co-treatment with music therapy and massage therapy benefits both the patients and their families. A case study recently published in Music & Medicine reported the benefits of co-treatment with music therapy and massage therapy for a…

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QI Initiative Reduces Emergency Room Visits for Functional Constipation
QI Initiative Reduces Emergency Room Visits for Functional Constipation 1024 683 Katie Brind'Amour, PhD, MS, CHES

Preliminary data from a large accountable care organization’s quality improvement efforts suggest advanced care visits dropped 27% in two years. Partners For Kids (PFK), the nation’s oldest and largest pediatric accountable care organization, launched a series of quality improvement (QI) projects targeting disease management…

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Racial Disparities in Healthcare Use Among Medicaid-Covered Children With Congenital Heart Disease
Racial Disparities in Healthcare Use Among Medicaid-Covered Children With Congenital Heart Disease 1024 683 Lauren Dembeck

In the United States, congenital heart disease is the most common birth anomaly, with almost 40,000 newborns diagnosed each year. As these children grow, they are at increased risk of developing cardiovascular complications. Thus, ensuring they receive recommended cardiology care is essential to their…

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small baby with nose canula
Ensuring Vulnerable Babies Receive the Benefits of Human Milk
Ensuring Vulnerable Babies Receive the Benefits of Human Milk 1024 575 Mary Bates, PhD

A QI project increases human milk consumption among newborns hospitalized with congenital heart disease. The American Academy of Pediatrics and the World Health Organization recommend human milk for infants because of its important health benefits. However, most newborns with congenital heart disease (CHD) are…

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Bridging Language Barriers to Advance Health Care Equity in Developmental Screenings
Bridging Language Barriers to Advance Health Care Equity in Developmental Screenings 1024 575 Pam Georgiana

A QI project to utilize interpreters for screening questionnaires eliminated completion disparities between English speakers and people who prefer a language other than English.  In primary care pediatrics, there are several standard screenings for development delay in children younger than 30 months. Nationwide Children’s…

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5 Keys to Managing Iron Deficiency in Children Undergoing Intestinal Rehabilitation
5 Keys to Managing Iron Deficiency in Children Undergoing Intestinal Rehabilitation 150 150 Erin Gregory

A new position paper offers recommendations for the evaluation and management of iron deficiency in children undergoing intestinal rehabilitation. Iron deficiency is a prevalent concern among children with certain digestive problems, presenting various health challenges. A position paper from the NASPGHAN Intestinal Rehabilitation Special…

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Bridging Gaps in Cerebral Palsy Treatment
Bridging Gaps in Cerebral Palsy Treatment 1024 575 Erin Gregory

Researchers investigate disparities in selective dorsal rhizotomy (SDR) access and follow-up care. A surgical procedure called selective dorsal rhizotomy (SDR) can help improve the lives of young patients living with cerebral palsy (CP) by reducing muscle stiffness in the lower limbs. A recent study…

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Developing Predictive Tools for CAKUT
Developing Predictive Tools for CAKUT 1024 575 Leslie Feldman

Pediatric nephrologists routinely see infants and children with congenital anomalies of the kidney and urinary tract (CAKUT) — the most frequent cause of childhood chronic kidney disease (CKD). Some of these anomalies are not clinically significant, while others result in varying degrees of kidney…

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Kidney Transplant Program and the Psychosocial Power Team: Expanding Care Through Collaboration
Kidney Transplant Program and the Psychosocial Power Team: Expanding Care Through Collaboration 1024 683 Leslie Feldman

In the United States, the availability of psychosocial services within pediatric nephrology centers varies widely – despite a well-documented necessity for the provision of holistic care. For the most part, the landscape of available psychosocial services within pediatric nephrology care is poorly characterized. However,…

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NIDDK Grant Awarded to Launch Integrated Islet Distribution Program Islet Isolation Center
NIDDK Grant Awarded to Launch Integrated Islet Distribution Program Islet Isolation Center 150 150 Katie Brind'Amour, PhD, MS, CHES

A Nationwide Children’s Hospital research team has received federal funding to become a hub for the isolation and distribution of high-quality human islet cells for the diabetes research community. Since joining Nationwide Children’s Hospital in 2022 as director of the Islet Cell Isolation Program,…

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Fetal Surgery for Spina Bifida: Supporting A Bright Future Closer to Home
Fetal Surgery for Spina Bifida: Supporting A Bright Future Closer to Home 150 150 Alaina Doklovic

During her 20-week ultrasound appointment, Brittany Badenhop learned her baby had spina bifida, a term used to describe many disorders that occur during the development of the central nervous system. Spina bifida occurs very early on in a pregnancy as the embryo forms. Brittany…

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Supporting Children With Interstitial and Rare Lung Disease
Supporting Children With Interstitial and Rare Lung Disease 1024 687 Abbie Miller

In pediatrics, some causes of lung dysfunction, while rare in their own right, are fairly common – such as cystic fibrosis, bronchopulmonary dysplasia and asthma. Interstitial and rare lung disease (IRLD) is an umbrella term for 30-50 diseases that affect children worldwide. IRLD may…

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New Fast, Reliable Model Tests Patient Response to Novel Treatments
New Fast, Reliable Model Tests Patient Response to Novel Treatments 150 150 Madison Storm

It’s well-known that treatments work for some patients and don’t for others, and this can be a real challenge when it comes to rare neurogenerative disorders. Dr. Kathrin Meyer and her lab established a faster, reliable in vitro model to investigate why. Recent research…

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Coexistence of Different Telomere Maintenance Mechanisms in Pediatric High-Grade Glioma Tumors
Coexistence of Different Telomere Maintenance Mechanisms in Pediatric High-Grade Glioma Tumors 1024 504 Lauren Dembeck

Due to within-tumor heterogeneity, telomere-based therapeutic interventions will likely need to target both known telomere maintenance mechanisms to prevent resistance and recurrence.   Normal differentiated somatic cells can divide only a limited number of times due to loss of the physical ends of their…

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A Decade of Evidence: The SIMPLE Program Shows Continued Success
A Decade of Evidence: The SIMPLE Program Shows Continued Success 1024 575 Pam Georgiana

In 2010, Nationwide Children’s Hospitals NICU leaders observed that infant feeding practices varied depending on the provider, resulting in significant variations in milestones and length of hospital stays (LOHS). They asked Sudarshan R. Jadcherla, MD, and Erika Osborn, NNP, to partner with stakeholders, including…

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Girl sitting on a bench with her phone smiling.
User Experiences With Subcutaneous Depot Medroxyprogesterone Acetate
User Experiences With Subcutaneous Depot Medroxyprogesterone Acetate 1024 683 Mary Bates, PhD

Survey reveals high satisfaction among adolescents and young adults using subcutaneous DMPA Depot medroxyprogesterone acetate (DMPA) is a progestin-only injectable contraceptive that is used as birth control method and in the treatment of heavy or painful menstrual periods, endometriosis, and for menstrual suppression. DMPA…

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Exploring the Clinical Journey of Children With Primary Hyperoxaluria
Exploring the Clinical Journey of Children With Primary Hyperoxaluria 150 150 JoAnna Pendergrass, DVM

Children with primary hyperoxaluria, a rare genetic disease, navigate a complicated clinical journey that includes a heavy reliance on health care services and usage of multidisciplinary care. Primary hyperoxaluria (PH) is a rare disease caused by genetic mutations of enzymes that regulate hepatic glyoxylate…

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Julie Samora, MD
Diagnosing and Treating Cubital Tunnel Syndrome in Adolescents
Diagnosing and Treating Cubital Tunnel Syndrome in Adolescents 1024 575 Mary Bates, PhD

Surgery leads to improved outcomes in pediatric patients with symptoms of cubital tunnel syndrome, even when electrodiagnostic studies are negative. In a new study, researchers from Nationwide Children’s Hospital demonstrate that pediatric patients who underwent surgical decompression for cubital tunnel syndrome achieved good resolution…

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Counseling Families of Patients with Hypoplastic Left Heart Syndrome
Counseling Families of Patients with Hypoplastic Left Heart Syndrome 150 150 Mary Bates, PhD

A new survey investigates how palliation strategies have changed in the last ten years. Approximately ten years ago, researchers at Nationwide Children’s Hospital surveyed pediatric cardiac providers regarding initial counseling for families of patients with hypoplastic left heart syndrome (HLHS). Given the evolution of…

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Using Machine Learning to Classify Treatment Approaches for Infants with Bronchopulmonary Dysplasia
Using Machine Learning to Classify Treatment Approaches for Infants with Bronchopulmonary Dysplasia 1024 683 Pam Georgiana

We don’t yet know the best way to help infants with severe bronchopulmonary dysplasia (BPD) breathe using ventilators. Currently, doctors across the country and around the world use a variety of different approaches.  These variations depend on the severity of a patient’s medical condition,…

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