Monthly Archives :

February 2021

More Data on Rare GI Diseases, With Less Work
More Data on Rare GI Diseases, With Less Work 1024 535 Katie Brind'Amour, PhD, MS, CHES
Collage of health technology tools

Electronic health record systems can drive knowledge acquisition in rare gastrointestinal conditions — and other orphan diseases — without the burden of duplicative data entry. Rare diseases often remain poorly understood and inefficiently treated due to a lack of objective knowledge on their natural history, pathophysiology or clinical outcomes in response to various therapies. Collecting…

What Puts Adolescent Patients With IBD at Risk for Suboptimal Transitions?
What Puts Adolescent Patients With IBD at Risk for Suboptimal Transitions? 1024 673 JoAnna Pendergrass, DVM

Psychosocial-related factors, such as mental health diagnoses and public insurance, have been shown to increase the risk of suboptimal transitions in adolescent patients with inflammatory bowel disease. Between ages 18 and 22, adolescent patients transition from pediatric to adult care. Ideally, at the time of transition, patients have the skills to manage their disease and…

Does Psychosocial Functioning Differ Among Children With and Without Differences of Sex Development?
Does Psychosocial Functioning Differ Among Children With and Without Differences of Sex Development? 1024 575 Lauren Dembeck
Parent and child holding hands

A multidisciplinary team of researchers recently found that children with differences of sex development (DSD) appear to be at greater risk for psychosocial problems relative to children with cleft lip and/or palate (CL/P) and unaffected peers. The study, which was published in the Journal of Pediatric Psychology, highlights the increased need for integrated interdisciplinary care with…

COVID-19 and the Heart: SARS-CoV-2-Associated Myocardial Infection
COVID-19 and the Heart: SARS-CoV-2-Associated Myocardial Infection 150 150 Simon Lee

Myocardial infection following COVID-19 illness has made headlines. Simon Lee, MD, tackles some commonly asked questions about MIS-C and isolated myocarditis after COVID-19 recovery.