Today, the American Academy of Pediatrics (AAP) has released its first policy statement addressing children with intellectual and developmental disabilities as organ transplantation recipients.
The policy statement, published online today in Pediatrics, recommends that transplant teams consider both the cognitive and adaptive skills of a patient when determining if a transplant could be of benefit, and recognize that children without disabilities are no more deserving of organ transplants than children with disabilities. The policy states that it is unethical to deny organ transplants to individuals with disabilities and may constitute illegal and unjustified discrimination.
Often, children with intellectual and developmental disabilities are not considered for organ transplants. A perceived lower quality of life compared to peers without disabilities is frequently cited as a reason for denial. Because children with disabilities can be organ donors, the policy states it would be unfair to exclude that patient population as recipients of organ transplants.
“An individual’s quality of life is unique and multifaceted, and it is known that those with disabilities rate their own quality of life similarly to their peers without disabilities,” said Garey H. Noritz, MD, section and division chief of the Complex Care Program at Nationwide Children’s Hospital and co-author of the policy statement. “This also applies to patients post-transplant: recipients with disabilities have reported improved quality of life, despite the potential challenges that surgery, immunosuppression and other therapies pose.”
According to the policy statement, AAP recommendations include:
“This statement is extremely important, as exclusion of these children from transplant consideration needs to end,” said Dr. Noritz. “Individuals with disabilities are just as deserving of any life-saving treatment as those without disabilities, and organ transplants are no exception.”
Reference:
Statter MB, Noritz G, Committee on Bioethics, Council on Children With Disabilities. Children with intellectual and developmental disabilities as organ transplantation recipients. Pediatrics. April 2020;e20200625. [Epub ahead of print]
Image credit: Nationwide Children’s